Sunshine Spaces, a nonprofit organization that creates dream rooms for children with life-threatening illnesses, and Global Shop Solutions, a leading producer of manufacturing ERP software, have joined forces to bring joy to the life of a young Woodlands, Texas, US, boy battling Duchenne’s Muscular Dystrophy (DMD).
The joint project, which will kick off on April 26, marks the third year in a row the two organizations have teamed up for a dream room project. It starts by sending the child’s family away for a weekend. While they’re gone, an army of volunteers transforms the child’s room and those of his siblings into dream spaces where they can rest, heal and be kids again. When the family returns, a procession of supporters welcomes them home to reveal their new spaces.
“Our mission is to infuse joy and hope into the lives of families with children who suffer from debilitating diseases,” says Erica Jones, founder of Sunshine Spaces. “The smiles on the faces of the children when they see their new rooms are priceless. We’re grateful to Global Shop Solutions for helping us make this possible.”
A space of their own during difficult times
This year’s dream room makeover is for Diego Garcia, a 12-year-old boy who was diagnosed with DMD at age three. Affecting mostly males, DMD robs the body of the ability to create a protein required for healthy muscle growth. Over time, the muscles progressively get weaker and waste away. There is no cure for DMD, but with medical treatments and special care the life expectancy can reach age 25.
The progression of DMD is extremely hard on the families. Diego is already in a wheelchair. By age 15 he will have limited use of his arms. At 18 he will need a ventilator at night to compensate for reduced heart and lung function. By age 20 he will be completely dependent on breathing assistance.
Bringing children peace and joy
Recognizing the challenges these families face, Sunshine Spaces steps in to create a place that brings peace and joy for the children; a space of their own they can feel excited to be in rather than trapped or isolated. Believing a dream room is just as important for the siblings, Sunshine Spaces is also providing a dream room (with an Avenger theme) for Diego’s 9-year-old brother, Maurico.
“We look forward to the Global Shop Solutions project every year,” says Joshua Jones, a board member for Sunshine Spaces. “We work around the clock for three days alongside volunteers from Global Shop to transform the children’s rooms, and the heart of this company is evident in that of their employees. They truly embody the principle of corporate giving and community first.”